Before I continue there are three things [4 if you’re me] that people with paraneoplastic syndrome, acquired brain injuries, [I’m sure others], are afraid of
1. falling
2. water in face
3. choking to death
I went to many doctors, hopping to get my answers. I went to my Chiropractor, thinking something was wrong with my ankles. He told me I have weak ankles and gave me some exercises to do. But, [a big ‘but’ should go there], he gave me a four page print out of ‘Why your Chiropractor is doing BLANK’. Among the list was Paraneoplastic Syndrome. Which I glanced at and put in my stack of ‘I’ll read later.’ I had the answers in my hand! And put them down.
I went to my physician, again, with my Mother, I needed her to drive and get her opinion of this guy. I wanted to have an MRI. He said he couldn’t have me get an MRI without him having a good medical reason. My mother was flabbergasted. I got my MRI, eventually. Which showed nothing [when you don’t know what you are looking for, you find NOTHING] I could hardly walk, well I swayed.
I went to a Naturopathic doctor, to no avail. My insurance didn’t cover the many visits there.
Still no answers. My mother’s best friend suggested to start at the first thing that started. [OH, IT WAS MY EYES! –sequence, baby, sequence]. Okay, I went to my Eye Doctor. She took one look in my eyes, with her doctor stuff, and said ‘You better get to the emergency room and ask to see a Neurologist’. On the way, my Mother and I, decided to stop for lunch. [typical girl stuff]. When we finished lunch I started to feel off balance, dizzy, and vision was disturbed. From there we went to the emergency room.
Before long I saw an Oncologist and Neurologist, thank God my Mother was there. She helped me a lot. I’m in the hospital thinking they won’t release me until they know what’s wrong with me. Once I was admitted I began feeling better. I had many tests done; MRI, Spinal tap, CAT Scan, blood work and I can’t remember what else. They had no answers for me and called my physician. He told them I was a Hypochondriac . [Really?] I looked it up to get the full definition.
Hypochondriac is a condition
that affects the mind where a person thinks they are ill yet in real sense they
are not. The person who is always under the impression
that they are ill and constantly get the fear of getting falling sick. Some of
the causes of hypochondriac are the underlying disease or illness. For
example a person who has chronic illness like cancer, diabetes or HIV/AIDS can
develop
this anxiety of thinking that they are
sick even when they are not. Another cause can be an irritating thought that
can dominate the mind about the fear of uncertainty or of the unknown. For
example if you have had someone who had the symptoms that are similar to yours
and they were diagnosed with certain diseases that scare you then you can begin
to feel sick.
I learned in the hospital if you can’t do for yourself, no one will help you. I watched many people suffer-alone. I never wanted to be one of them. Finally I got discharged. I couldn’t wait for my parents to pick me up and go to my apartment to my cat. As I washed up in their bath room, I looked in the mirror and my eyes couldn’t focus. It was as if the horizontal hold on the t.v. needed to be adjusted. [I’m dating myself now. We are talking pre-cable]. One of my parents came in to get me. I was told by doctors there I had a really bad flu. My parents could not understand why I was in such a rush to get out of there. At that point I needed help walking.
……TO BE CONTINUED......
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